Archive | June 6, 2014

Mirror Mirror

Letters and Lessons For My Daughter

Dear Ellie:

This past weekend while at the grocery store a nice lady approached us and complemented you on how pretty you were and then told me that you looked just like me. Even though I think you are the perfect mix of Mommy and Daddy we often get that compliment while out and about. I’m not sure if people realize how big that is to me or if they are just making an observation, probably the latter. But my baby I don’t think I’ve ever received a bigger or better compliment than when people say you remind them of me or that you look just like me. Sometimes I even catch myself off guard looking through the thousands of pictures I’ve taken of you and have to agree that it really is like looking in a mirror some days. Can you imagine someone comparing you to your picture of perfection…talk…

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My Greatest Sorrow is My Greatest Joy

Strengthening the Soul

“Enjoy the little things, for one day you may look back and realize they were the big things” ~ Robert Brault

She’s dying. My 9 year old daughter is dying. Today I can say it without crying, but not necessarily tomorrow. Each day is filled with up and down emotions. Some days I am hopeful for a cure, but many days I am filled with despair and an indescribable sadness. My heart aches. My tears burn. My head and my body are tired.

You see, my daughter Abby was recently diagnosed with a rare, genetic disease that is terminal. There is no cure or treatment. No cure. 100% terminal. Every child diagnosed with this disease will die. I have never felt so helpless. As mothers, it is our job to nurse our child’s boo-boos, dry their tears, teach them how to deal with sorrow and upsets, and give them hope…

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